Long COVID isn’t just a concern for adults—it’s affecting children too, and it can be an incredibly frustrating and confusing time for parents. If you’re navigating this new reality, you’re likely juggling your child’s symptoms while also battling the feeling of being dismissed by healthcare providers. But there is hope—and with the right knowledge, resources, and support, you can help your child get the care they need.
Recognising Long COVID in Children
Long COVID can look different in children compared to adults. Some of the most common symptoms include:
- Persistent fatigue that doesn’t improve with rest.
- Brain fog and difficulty concentrating, affecting their school performance.
- Headaches, muscle pain, and stomach problems.
- Emotional changes, such as irritability or anxiety.
- Changes in taste or smell, and sometimes joint pain.
Unlike adults, children may struggle to describe their symptoms clearly, so it’s vital for parents to observe patterns and advocate for further investigation if symptoms persist.
Fighting for Your Child: Advocacy in Action
One of the most challenging aspects of managing Long COVID in children is being taken seriously. Many parents report that their concerns are dismissed, leaving their children without the support they need.
How You Can Advocate
- Document Symptoms: Keep detailed records of your child’s health, including symptoms, triggers, and the impact on daily life. Make pictures and videos if needed.
- Push for Referrals: Insist on seeing paediatric specialists or accessing Long COVID specialists.
- Know Your Rights: Schools and healthcare providers must consider your child’s needs—use advocacy groups to support your case.
- Demand Comprehensive Testing: Fatigue isn’t just tiredness. Ask for investigations into heart, lung, and immune system function if symptoms persist.
Spotlight on Experts: Dr Danilo Buonsenso
Dr Danilo Buonsenso, a paediatrician and researcher collaborating with Long COVID Kids, is working tirelessly with doctors worldwide to understand and treat Long COVID in children. His research and advocacy are helping to improve awareness and create pathways for better care. By supporting organisations like Long COVID Kids, you’re also amplifying the efforts of professionals like Dr Buonsenso, who are paving the way for improved outcomes.
Supporting Children with Long COVID in Education
Long COVID can significantly disrupt a child’s ability to attend school and engage in learning. Symptoms like fatigue, brain fog, and pain make traditional school schedules incredibly challenging.
Tips for Supporting Your Child’s Education:
- Flexibility Is Key: Discuss reduced hours or hybrid learning models with your child’s school.
- Work with Educators: Many teachers are unaware of how Long COVID affects children. Provide them with resources from organisations like Long COVID Kids to foster understanding.
- Individualised Education Plans (IEPs): These can be tailored to accommodate your child’s fluctuating health, ensuring they don’t fall behind.
- Consider Home-Based Support: Some children may benefit from temporary home education, supported by online tools and local education authorities.
Education is a lifeline for children, not just academically but socially. Working closely with schools can help them feel included and supported, even on tough days.
Community Support: You’re Not Alone
Advocating for your child can feel isolating, but there are communities and charities ready to help. Long COVID Kids, a UK-based charity, provides resources for families, including support groups, advocacy materials, and education on navigating healthcare systems.
Conclusion: Be the Voice Your Child Needs
Long COVID in children is real, and it’s affecting their lives in profound ways. As a parent, your role as an advocate is critical. Educate yourself, seek out support networks, and push for proper medical and educational accommodations.
You are not alone in this journey. Together, we can ensure that no child is left behind.
Long Covid Journey 