The author recounts their struggle with persistent symptoms after COVID, initially mistaken for anxiety, later diagnosed as Postural Orthostatic Tachycardia Syndrome (POTS) and mast cell activation syndrome (MCAS). They detail managing autonomic dysfunction through lifestyle adjustments and support, emphasizing the emotional impact on family and the ongoing nature of recovery.
Tag: orthostatic intolerance
POTS and Orthostatic Intolerance: What You Need to Know
Postural orthostatic tachycardia syndrome (POTS) is a real, disabling condition affecting the body's autonomic nervous system, blood volume, and immune response. Patients experience symptoms like dizziness, rapid heartbeat, and fatigue upon standing. Multiple overlapping mechanisms contribute to POTS, and proper diagnosis and management can significantly improve patient outcomes. Understanding and recognition are crucial.
Post-Exertional Malaise (PEM) and What Can Be Done
Post-exertional malaise (PEM) is a severe symptom of myalgic encephalomyelitis/chronic fatigue syndrome and long COVID, causing worsened symptoms after exertion. It involves impaired energy production, neuroinflammation, autonomic nervous system dysfunction, and muscle issues. Management strategies include pacing, heart rate monitoring, targeted medications, and lifestyle adjustments to alleviate symptoms.
Long Covid Journey 