I’ll admit I still struggle to write about pacing, because I’m still learning how to do it myself. That’s the reality of living with chronic illnesses like autoimmune diseases or Long COVID or ME/CFS. When someone says “just go slower,” it misses the point entirely. Pacing isn’t simply throttling down; it’s a dynamic tightrope walk … Continue reading The Art of Pacing: Energy Management for Long COVID
Tag: PEM management
Decoding ME/CFS: Key Genetic Findings Explained
Recent genetic research has confirmed that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a biological condition, not merely psychological. The DecodeME study identified eight genetic signals linked to the immune and nervous systems, validating patient experiences. Understanding this can aid healthcare discussions, allowing for better management and support for those affected.
What is Post-Exertional Malaise (PEM) and What Can Be Done
Post-exertional malaise (PEM) is a severe symptom of myalgic encephalomyelitis/chronic fatigue syndrome and long COVID, causing worsened symptoms after exertion. It involves impaired energy production, neuroinflammation, autonomic nervous system dysfunction, and muscle issues. Management strategies include pacing, heart rate monitoring, targeted medications, and lifestyle adjustments to alleviate symptoms.
Long Covid Journey 