ILiving with Long Covid, ME CFS, or other chronic illnesses often feels like walking a tightrope. Every activity from household chores to a short walk requires careful thought, attention, and restraint. That is where pacing comes in a deliberate evidence based strategy for managing energy preventing post exertional malaise and maintaining quality of life. Pacing … Continue reading The Art of Pacing in Long COVID: How to Protect Your Energy and Avoid Crashes
Tag: PEM management
Decoding ME/CFS: Key Genetic Findings Explained
Recent genetic research has confirmed that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a biological condition, not merely psychological. The DecodeME study identified eight genetic signals linked to the immune and nervous systems, validating patient experiences. Understanding this can aid healthcare discussions, allowing for better management and support for those affected.
Post-Exertional Malaise (PEM) and What Can Be Done
Post-exertional malaise (PEM) is a severe symptom of myalgic encephalomyelitis/chronic fatigue syndrome and long COVID, causing worsened symptoms after exertion. It involves impaired energy production, neuroinflammation, autonomic nervous system dysfunction, and muscle issues. Management strategies include pacing, heart rate monitoring, targeted medications, and lifestyle adjustments to alleviate symptoms.
Long Covid Journey 