Britain faces an economic crisis due to Long Covid, with over two million affected individuals suffering debilitating symptoms. The rise in economic inactivity, currently at 2.8 million, highlights the failure of public health policies. Addressing this requires recognizing Long Covid under disability laws and implementing structural changes to support affected workers.
Tag: ME/CFS
The Art of Pacing: Energy Management for Long COVID
I’ll admit I still struggle to write about pacing, because I’m still learning how to do it myself. That’s the reality of living with chronic illnesses like autoimmune diseases or Long COVID or ME/CFS. When someone says “just go slower,” it misses the point entirely. Pacing isn’t simply throttling down; it’s a dynamic tightrope walk … Continue reading The Art of Pacing: Energy Management for Long COVID
Giving Voice to Chronic Illnesses
The article explores the challenges faced by individuals with severe chronic illnesses, particularly those who are housebound or bedbound. It highlights the importance of digital communities that provide connection and support for these often-invisible individuals. The author emphasizes the responsibility of sharing their stories and understanding their experiences, acknowledging their silence and resilience.
Decoding ME/CFS: Key Genetic Findings Explained
Recent genetic research has confirmed that Myalgic Encephalomyelitis/Chronic Fatigue Syndrome (ME/CFS) is a biological condition, not merely psychological. The DecodeME study identified eight genetic signals linked to the immune and nervous systems, validating patient experiences. Understanding this can aid healthcare discussions, allowing for better management and support for those affected.
Chronic Illness in Pop Culture: TV and Film Moments That Highlight ME/CFS and Long COVID
Media significantly influences societal perceptions of chronic illnesses like ME/CFS and Long COVID, often misunderstood and underrepresented. Key portrayals in shows like "The Golden Girls" and documentaries like "Unrest" raise awareness yet reveal gaps in representation. More nuanced narratives are crucial for fostering understanding and reducing stigma surrounding these complex conditions.
What is Post-Exertional Malaise (PEM) and What Can Be Done
Post-exertional malaise (PEM) is a severe symptom of myalgic encephalomyelitis/chronic fatigue syndrome and long COVID, causing worsened symptoms after exertion. It involves impaired energy production, neuroinflammation, autonomic nervous system dysfunction, and muscle issues. Management strategies include pacing, heart rate monitoring, targeted medications, and lifestyle adjustments to alleviate symptoms.
Long Covid Journey 