The author recounts their struggle with persistent symptoms after COVID, initially mistaken for anxiety, later diagnosed as Postural Orthostatic Tachycardia Syndrome (POTS) and mast cell activation syndrome (MCAS). They detail managing autonomic dysfunction through lifestyle adjustments and support, emphasizing the emotional impact on family and the ongoing nature of recovery.
Tag: Dysautonomia
POTS and Orthostatic Intolerance: What You Need to Know
Postural orthostatic tachycardia syndrome (POTS) is a real, disabling condition affecting the body's autonomic nervous system, blood volume, and immune response. Patients experience symptoms like dizziness, rapid heartbeat, and fatigue upon standing. Multiple overlapping mechanisms contribute to POTS, and proper diagnosis and management can significantly improve patient outcomes. Understanding and recognition are crucial.
Redefining Strength: Coping with Long COVID
Long COVID dramatically altered my life, transforming simple tasks into strategic challenges. The symptoms, like dizziness and tachycardia, necessitate constant planning and acceptance of help. I've learned that strength is now about awareness and adaptation rather than endurance, cultivating gratitude for small moments amidst this new reality.
Long COVID and Poo: Understanding Gut Health Issues
Long COVID can significantly disrupt digestive health, causing symptoms like diarrhea, constipation, and bloating. The gut’s microbiome may be affected, leading to motility issues and inflammation. Practical strategies, including dietary changes, hydration, and regular movement, can help manage symptoms. It’s essential to consult a healthcare professional for persistent issues.
The Economic Costs of Ignoring Covid in Britain
Britain faces an economic crisis due to Long Covid, with over two million affected individuals suffering debilitating symptoms. The rise in economic inactivity, currently at 2.8 million, highlights the failure of public health policies. Addressing this requires recognizing Long Covid under disability laws and implementing structural changes to support affected workers.
Navigating Life’s Challenges Post-COVID
Life is divided between those who have moved on from COVID and those with long COVID, facing daily struggles. Small achievements feel monumental, while society neglects the ongoing crisis. Advocating for ourselves and supporting each other is vital as we navigate fatigue and isolation, striving for recognition and change. Hope lies in community and shared victories.
Managing Heat Intolerance in Long COVID Patients
Long COVID sufferers often experience heightened heat intolerance due to autonomic dysfunction, resulting in symptoms like rapid heart rate and dizziness. Heat can trigger Mast Cell Activation Syndrome and worsen immune dysregulation. To manage these challenges, hydration with electrolytes and cooling strategies are vital, as symptoms reflect serious underlying issues.
Long COVID and Weather: When the Forecast Affects Your Function
Long COVID and Weather: When the Forecast Affects Your Function One day it’s sunny, the next it’s raining sideways, and your body reacts as if it’s been through a tumble dryer on spin cycle. For many living with Long COVID, these moody weather swings aren’t just irritating—they can spark a full-on symptom spiral. Let’s explore … Continue reading Long COVID and Weather: When the Forecast Affects Your Function
Post-Exertional Malaise (PEM) and What Can Be Done
Post-exertional malaise (PEM) is a severe symptom of myalgic encephalomyelitis/chronic fatigue syndrome and long COVID, causing worsened symptoms after exertion. It involves impaired energy production, neuroinflammation, autonomic nervous system dysfunction, and muscle issues. Management strategies include pacing, heart rate monitoring, targeted medications, and lifestyle adjustments to alleviate symptoms.
Spring: Allergies and Long Covid – Navigating the Overlap
Spring can be challenging for those with Long Covid and allergies. Differentiating between the two involves recognizing severe fatigue, brain fog, and persistent respiratory issues as symptoms of Long Covid. Effective management includes hydration, proper medications, and monitoring symptoms. Embracing a slower pace and practicing self-care is essential for navigating the season.
Living with Long COVID: Navigating a Forgotten Pandemic
Life feels like it’s split into two worlds these days. There’s the world of people who have “moved on” from COVID—living life as if the pandemic never happened—and then there’s ours: the world of people with long COVID, and other Chronic Illness, where every step forward feels like climbing Everest. For many of us, life … Continue reading Living with Long COVID: Navigating a Forgotten Pandemic
Living with POTS and Dysautonomia after Long COVID: Symptoms, Tips, and Daily Life
Post-COVID dysautonomia, particularly POTS (Postural Orthostatic Tachycardia Syndrome), leads to symptoms like dizziness and fatigue when standing. It often results from COVID-related inflammation or nerve damage. Daily life includes struggles with heat, exercise, digestion, and brain fog, requiring humor and adjustments, such as increased salt intake and hydration.
Long Covid Journey 