Media significantly influences societal perceptions of chronic illnesses like ME/CFS and Long COVID, often misunderstood and underrepresented. Key portrayals in shows like "The Golden Girls" and documentaries like "Unrest" raise awareness yet reveal gaps in representation. More nuanced narratives are crucial for fostering understanding and reducing stigma surrounding these complex conditions.
Tag: post-exertional malaise
What is Post-Exertional Malaise (PEM) and What Can Be Done
Post-exertional malaise (PEM) is a severe symptom of myalgic encephalomyelitis/chronic fatigue syndrome and long COVID, causing worsened symptoms after exertion. It involves impaired energy production, neuroinflammation, autonomic nervous system dysfunction, and muscle issues. Management strategies include pacing, heart rate monitoring, targeted medications, and lifestyle adjustments to alleviate symptoms.
Parenting with Long COVID. How to cope as a parent.
Parenting during long COVID presents unique challenges such as severe fatigue, brain fog, and emotional strain. It encourages parents to embrace a relaxed approach, master quick naps, simplify expectations, communicate openly with kids, and seek help from friends and family. Humor and self-kindness are essential components for navigating this difficult period.
Recurrent COVID Infections: What Insurers See That Governments Ignore
A recent Swiss Re analysis warns that recurrent COVID-19 infections are causing long-term harm to individuals, healthcare systems, and the economy. Insurers report rising disability claims and mortality, while healthcare systems struggle under increased patient loads. Governments often ignore the ongoing crisis, leaving individuals vulnerable. Personal protection and advocacy for better policies are crucial.
Long COVID vs. Deconditioning: How to Spot the Differences and Manage Symptoms
Long COVID is a complex, multi-system condition characterized by symptoms like post-exertional malaise, brain fog, and autonomic dysfunction. Differentiating it from deconditioning involves tracking symptoms, monitoring heart rate, and conducting medical assessments. Effective treatments for Long COVID focus on pacing and specialist support, while deconditioning requires gradual exercise and professional guidance.
Navigating Winter Holidays with Long COVID Symptoms
The article provides strategies for managing long COVID symptoms during winter holidays. It emphasizes the importance of planning, pacing, and setting boundaries to balance festivities and health. Tips include dressing warmly, staying hydrated, monitoring food choices, using air purifiers, and scheduling recovery days to ensure enjoyable gatherings without overwhelming fatigue or discomfort.
Winter Getaways for Long COVID: Explore Wisely
Winter retreats in the mountains can be challenging for those with mild Long COVID due to altitude and cold exacerbating symptoms. However, with careful planning and a focus on gentle activities like short walks or relaxing in cabins, individuals can enjoy the scenery while prioritizing their health and well-being.
Post-Exertional Malaise (PEM): A paced Relationship with My Body
Living with Long COVID and Post-Exertional Malaise (PEM) is characterized by unpredictable energy levels, making everyday tasks a challenge. The author details their fluctuating experience, balancing activity with the risk of exhaustion. They emphasize the importance of pacing, self-kindness, and recognizing small victories while adapting to this complex relationship with their body.
Celebrating small victories: Living with Long COVID
The author reflects on the significance of small victories while living with long COVID, such as walking for a cappuccino. They highlight the emotional complexities tied to these moments, describing shifts in the perception of success and self-care. Celebrating minor achievements is emphasized as essential for resilience and finding joy amidst challenges.
Understanding Long COVID: More Than Just Deconditioning
Long COVID is a complex condition distinct from simple deconditioning. It presents unique symptoms like brain fog, nerve pain, and post-exertional malaise (PEM), where exertion causes severe fatigue. Autonomic dysfunction further complicates recovery, making exercise challenging. Research indicates it’s not linked to laziness or lack of fitness but involves systemic issues needing careful management.
Long Covid Journey 