Last updated: August 2026 | Brain fog friendly Dizziness is one of the most unsettling symptoms of Long COVID. It can feel as though the room is spinning, as though you're about to faint, or simply as though your balance has disappeared overnight. The confusing part is that these sensations can have completely different causes, … Continue reading Dizziness and Vertigo in Long Covid: What Is Happening and What Actually Helps
Category: Support and Resources
Explore patient communities, charities, helplines, and advocacy organizations that provide guidance and support for people living with Long COVID. Find practical help and connection through trusted resources.
People the Internet Cannot Reach: Severe Long Covid and the Proxy Layer
This article highlights the neglect of severely ill Long Covid patients who are housebound or bedbound and largely excluded from online communities and research. Their unique challenges, such as cognitive and sensory limitations, hinder participation in digital forums. The proxy layer, consisting of caregivers, navigates these patients' needs, emphasizing the necessity for inclusive support and research tailored to their experiences.
How to Stop Long Covid Getting Worse: Pacing, PEM, Reinfection and Recovery
Long COVID does not always worsen over time, but certain factors—including repeated post-exertional malaise (PEM), reinfection, pushing beyond your energy limits and returning to intense exercise too soon—may increase the risk of prolonged symptoms. While there is no guaranteed way to prevent worsening, research suggests that pacing, avoiding repeated crashes, reducing reinfection risk and managing … Continue reading How to Stop Long Covid Getting Worse: Pacing, PEM, Reinfection and Recovery
Long COVID and the Gut: What the Microbiome Research Really Shows
Long COVID gut research is rapidly changing our understanding of the condition. Scientists now believe the gut microbiome may influence inflammation, the immune system, brain fog and many of the symptoms experienced by people living with Long COVID. Someone in a Facebook group mentioned Candida. Or fungi. Or something about parasites and leaky gut and … Continue reading Long COVID and the Gut: What the Microbiome Research Really Shows
Living With Long Covid Day to Day: Everything You Need to Know in 4 Minutes
Reading time: 4 minutes | Last updated: July 2026 | Brain fog friendly Living with Long COVID day to day is very different from understanding it clinically. The clinical articles explain what Long Covid does to your body. This one explains what it does to your life. To your days, your relationships, your work, your … Continue reading Living With Long Covid Day to Day: Everything You Need to Know in 4 Minutes
Long COVID and the Immune System: Why It Can Be Both Overactive and Underactive
Long Covid presents a complex immune dysfunction characterized by simultaneous hyperactivity and hypoactivity, leading to inflammation, immune exhaustion, autoimmunity, and reactivation of latent viruses. Patients face chronic immune dysregulation, resulting in persistent fatigue and increased vulnerability to infections. Understanding these interconnected mechanisms is crucial for effective management and treatment.
How to Survive a Heatwave with Long COVID: Practical Tips for POTS, Dysautonomia and Chronic Illness
New to this topic? This guide focuses on practical strategies to cope with hot weather. If you would like to understand why heat makes Long COVID symptoms worse, including the role of autonomic dysfunction, POTS, blood pooling and impaired thermoregulation, we recommend reading our companion article Why Heat Makes Long COVID So Much Worse: The Science Behind Heat Intolerance first. … Continue reading How to Survive a Heatwave with Long COVID: Practical Tips for POTS, Dysautonomia and Chronic Illness
Why the People You Love Find Long Covid So Hard to Believe
Long COVID affects more than the body—it changes relationships. Learn why fluctuating symptoms, delayed crashes and normal-looking days can make the condition difficult for loved ones to understand, and what can help patients and families communicate more effectively.
Long COVID and the Gut: How Your Microbiome, Immune System and Brain Are Connected
Your gut and your brain fog may be more connected than anyone told you. This is what the research actually shows.
Long COVID Heat Intolerance: Why Heat Makes Symptoms Worse
Long COVID heat intolerance is one of the most common but least understood symptoms experienced by people living with Long COVID, POTS and dysautonomia. Everyone else thinks the heatwave is great. You are lying very still with the curtains shut wondering why a warm sunny day feels like a physiological attack. You are not being dramatic. … Continue reading Long COVID Heat Intolerance: Why Heat Makes Symptoms Worse
Long Covid Pain: Everything You Need to Know in 4 Minutes
Reading time: 4 minutes | Last updated: July 2026 | Brain fog friendly Long Covid Pain is real, measurable, and biological. It is not a consequence of anxiety. It is not your body imagining things. It is the result of a nervous system that has been fundamentally altered by SARS-CoV-2 one that now processes pain … Continue reading Long Covid Pain: Everything You Need to Know in 4 Minutes
Long Covid Sleep: Everything You Need to Know in 4 Minutes
Reading time: 4 minutes | Last updated: May 2026 | Brain fog friendly Long COVID sleep problems affect between 40 and 76% of patients and are one of the most disabling features of the condition. And yet they are almost never addressed specifically. You are told to rest more. You are not told why rest … Continue reading Long Covid Sleep: Everything You Need to Know in 4 Minutes
POTS and Dysautonomia in Long Covid: Everything You Need to Know in 4 Minutes
Dysautonomia affects 30-50% of Long Covid patients, disrupting the autonomic nervous system and causing various symptoms like POTS, syncope, and temperature intolerance. This condition is often misdiagnosed due to its wide-ranging effects. Effective management includes hydration, dietary adjustments, and specialized medications, with many patients experiencing gradual improvement over time.
Long Covid Breathlessness: Everything You Need to Know in 4 Minutes
Reading time: 4 minutes | Last updated: July 2026 | Brain fog friendly Long COVID breathlessness is often more complex than a problem with the lungs alone. Many people experience persistent shortness of breath despite normal chest X-rays, oxygen levels and lung function tests. Research suggests that autonomic dysfunction, altered breathing patterns, impaired cellular energy … Continue reading Long Covid Breathlessness: Everything You Need to Know in 4 Minutes
Is Long Covid Permanent? What the 2026 Research Actually Says
Most people with Long Covid experience gradual improvement over twelve to twenty-four months, according to a 2025 study. However, approximately 17% may have persistent symptoms or worsening conditions. Understanding individual variations and biological factors is crucial, as ongoing research aims to develop targeted therapies. Avoiding reinfection is also essential for recovery.
Long COVID and Normal Tests: Why Results Don’t Always Reflect Reality
The article discusses the limitations of binary thinking in clinical practice, particularly regarding Long Covid. It highlights how standardized tests often fail to capture individual patient experiences and recovery patterns, leading to misinterpretation and potentially harm. Emphasizing the importance of functional assessments and trajectory-based reasoning, it calls for a more nuanced approach to patient care.